Things to know when you get cancer(jjmaxwell4.com)
1847 points by jjmaxwell4 1 day ago | 442 comments
tl;dr: A cancer patient diagnosed with squamous cell carcinoma shares practical lessons: be relentlessly persistent in scheduling, push hard for genetic testing, consult the NCCN Standard of Care guidelines, and talk to someone who's had the surgery before agreeing to it. Always get a second opinion at a top-ranked cancer center (per US News rankings) even if it requires travel—the speed and expertise gap versus community hospitals is significant. Also, be wary of AIs downplaying symptoms, and use AI to summarize appointment notes for continuity.
HN Discussion:
  • ↑Second opinions at top cancer centers saved lives and are essential advice
  • ↑Bring someone to appointments to take notes and ask questions
  • ~List is practical but misses the deeper need to prepare for death and estate planning
  • ↑US healthcare requires aggressive self-advocacy because the system has competing interests
  • •Experience in nordic/European systems is radically different and less adversarial